The board of the HCHWA-D consists volunteers. All of us have affinity with the disease in one way or another. Our patient advocate Sanne van Rijn, Msc., who is a EUPATI fellow, is partly paid for her work.
| Chairman: | Vacant |
| Secretary: | Vacant |
| Treasurer: | Mr. J. van Rijn |
| General Boardmembers: |
Ms. A. Potters |
Our board members have different abilities that make us suitable for the job ánd a good team. We all have an association with the disease one way or another and are very motivated.
We meet each other in an official capacity four times a year to evaluate our work (supply information, organise and provide support, advise third parties about healthcare and research, etcetera) and discuss ways we can improve when needed.
Vereniging HCHWA-D
Postbus 3031
2220 CA Katwijk
zorgloket@hchwa-d.nl
IBAN: NL35 RABO 01406.11.789